Bexley News

Marc Levison 5K Run/Walk

Event continues what namesake started

Participants still making strides to find a cure for ALS

Tuesday August 27, 2013 8:53 AM

The 11th Annual Marc Levison 5K Run/Walk for Lou Gehrig's Disease will be held at 8:30 a.m. Sunday, Sept. 1, at Jeffrey Mansion, 165 N. Parkview Ave.

Levison, who for more than 20 years championed the fight against amyotrophic lateral sclerosis (ALS), more commonly known as Lou Gehrig's Disease, died in October 2009 after battling cancer for several years.

Lou Gehrig's Disease is a progressive motor neuron disease that affects nerve cells in the brain and the spinal cord, eventually leading to paralysis and death. Those diagnosed with the disease are typically given a two- or three-year life expectancy, and there is no known cause or cure for the disease.

"My father believed he was diagnosed with the disease for a purpose, and that his purpose was to find a cure," said Brent Levison, Marc's son and co-organizer of the event, in a press release.

Marc Levison was one of the longest known survivors of the disease. He made his way through the community using a motorized wheelchair, taking time for daily visits to the local Starbucks to drink coffee and eat cake, which he enjoyed without assistance. Using just one finger to type, he frequently posted his "Thoughts for the Day" on his blog and stayed in touch with friends via email. He was frequently found at Bexley High School, Capital University and Ohio State University sporting events.

The Marc Levison 5K Run/Walk raises awareness and money for ALS and other motor neuron diseases for research at the Children's Research Institute at Nationwide Children's Hospital. It has raised more than $225,000 for this cause.

To sign up for the event online, visit To become a sponsor, contact Brent Levison via email at with "Marc Levison Sponsor" in the subject line.

Donations also can be sent to: Marc Levison Run/Walk for ALS c/o The Helping Link Foundation, 2935 E. Main St., Columbus, Ohio 43209. Make checks payable to the Helping Link Foundation.